First, let me apologize for not writing as much as I probably should. I guess my only excuse is that it’s hard to find things to write about when all is going well! Right?
I have just been trucking along! Not really any change in how I am doing! The only thing I can point out is that for the past few months, right after my infusion, I seem to have been catching a cold!! Dealing with it fora couple weeks then about the time I seem to get over it, it’s time for another infusion! Which just means I get to do it all over again!! Fun!!! Not!! But it could be worse. At least I can deal with the symptoms of that with medication! Haha
I have spoken to my Dr in Dallas about her wanting to change how often I get the infusions and what were the benefits of doing so. She wanted to change them to every six weeks and the reasoning was that it would lessen my exposure to Tysabri and give me more time on it since I did test positive for the JC Virus. After speaking with her I thought we could try it. We can see how it goes. She said that she didn’t want to make that change until it was cooler (since I spoke to her about this in August!) so I wouldn’t have the heat to deal with on top of not getting the infusion as often! As of right now we still haven’t made this change so I figure it probably won’t happen until after I see her again in the middle of December.
I have also had a little trouble sleeping! It’s like I just can’t stay asleep the whole night! I continuously wake up at least two or three times a night. I consider it a huge bonus if I can sleep all night cause it makes for a long day the next day so that is getting old!!
So other than the whole cold and sleep thing, it’s been good! I am still able to work and do many of the things that I always have! I just miss being able to be as involved at the theatre as I once was but it almost kinda scares me! There are still a few things that can happen at anytime that makes making a commitment like that a little daunting! Plus with my infusions, there are times that I won’t be able to be there, and that is like a big no no! Haha So still going to have put that on hold!
That about sums up my life right now! Thanks for reading!!