Well the time is nearing for another trip to Dallas to see the specialist. As I mentioned before, the last time I saw her at a seminar type meeting she told me to remind her that we need to “discuss my dosing on the Tysabri”. Since then, my nerves are kinda getting to me.
I spoke with the doctor at the infusion center about it the last time I saw him. He said that a lot of doctors have been going to every other month dosing in patients that tested positive for the JC virus in order to limit the exposure to the drug. I have a few reservations about this. One big one being that as of right now, I can already feel a difference when it comes time for my next infusion. About 3-4 days before, I get tired and run down a lot easier. So if I go to every other month dosing am I gonna have to feel like that for a month before my next infusion? If so, no thank you!! That would suck!!
Next question about that course of action is whether or not it will still be as effective as it has been up to this point!! If you have read any of my previous blogs, you will know that I couldn’t be happier with where my health has gone since starting Tysabri! I have finally found something that works with me. Why change it?? I know there is the concern about being JC virus pos. but if I’m willing to take that risk, again I ask, why mess with a good thing?
I know that there is no need in worrying about it until we get there but I can’t keep my head from swimming with the questions. I guess I will just have to wait until Monday comes to get some answers! Thanks for reading and taking this journey with me!