So, the last update I posted was over a week ago and was about day 3 of the Lemtrada Journey. I’m sure some of y’all feel like I just left you hanging on the remaining days of this process and I kinda did. Not on purpose though. I just didn’t have the motivation to post…
Yesterday was my day 3 of getting Lemtrada. Another good day. Everything got started easy enough. Steroids followed by Benedryl and Tylenol and those were followed by Lemtrada. Got done at about 3:30 yesterday afternoon. Now I get a few days off. Don’t have to go back until Monday morning. Curious to see how I…
Well today was a better day. We arrived at the dr’s office on time and got started on steroids pretty quick. That was followed by more Benadryl and Tylenol. Then the Lemtrada started. I had absolutely no problems today. I snoozed a little due to the Benedryl but other than that everything went off without…
Today was the day I began the Lemtrada journey. Lemtrada is a treatment for MS that basically retrains the immune system so it doesn’t attack the coverings of the nerves in the body. This means that it is supposed to stop further disease progression. This is a good thing. It is given by infusion for…
Yesterday was very emotional and mentally tough to process. I went in for my regular Tysabri infusion and Dr visit. I had some things I wanted to ask him about since my last visit with my MS specialist. You know, the visit where she suggested to shake things up by changing me from Tysabri to…
Well where do I start? It’s been quite a while since I wrote anything here. It was also quite a year last year. So let’s begin with the basics. The family is doing good. The oldest will turn 8 in March. He is halfway done with 2nd grade and he already ready for it to…
Well I have officially been at the new job for a month now. Loving it! The money is nice and loving the schedule. I can’t complain about working for four days and then having four days off. Still getting used to it but it will get there. Just had the awesome opportunity the other night…
Well, I am back. Hopefully on a more regular basis. With the new job, I have a little more time to write a little more often. I am honestly going to try to do just that. Write more. It seems easy enough. right? So lets give it a try. I recently traveled to Dallas…
After attempting to stay awake all night last night to prepare for my first night at work, my daytime sleeping turned out to be harder than expected. I kept waking up every couple of hours thinking i was late. Obviously my mind needs a little more convincing that it’s ok to sleep when the sun…
Well, its been an interesting summer so far. Started out with a pretty major flare up of my MS where my left side went very weak. I was having trouble walking and being able to complete the most basic of tasks much less do my job very well while at work. Had to have steroid…
Had my latest MRI done this morning. They aren’t my favorite thing to do but I have to admit I don’t hate/dread it. I guess I’m fortunate. I don’t suffer from claustrophobia or anything that causes panic. I just have to lie there and be still. It’s a good time to go inside my head…
Wow! It’s been a while since I posted here and I would like to apologize for the long absence! It’s just hard to write for the blog while sleep sounds so nice!! Haha I could tell you that it’s the MS fatigue that’s the cause for my exhaustion, but I would be lying to you.…
